Valvular & structural heart disease
The First International Consortium for Health Outcomes Measurement (ICHOM) Standard Dataset for Reporting Outcomes in Heart Valve Disease: Moving From Device- to Patient-Centered Outcomes: Developed by a multisociety taskforce coordinated by the Heart Valve Society (HVS) including the American Heart Association (AHA), the American College of Cardiology (ACC), the European Association for Cardio-Thoracic Surgery (EACTS), the European Society of Cardiology (ESC), The Society of Thoracic Surgeons (STS), the Australian & New Zealand Society of Cardiac & Thoracic Surgeons (ANZSCTS), the International Society for Applied Cardiovascular Biology (ISACB), the International Society for Minimally Invasive Cardiothoracic Surgery (ISMICS), the South African Heart Association (SHA), Heart Valve Voice, and Global Heart Hub
Authors' conclusion
Through a unique collaborative effort between patients and cardiology and cardiothoracic surgery societies, a standard set of measures for HVD was developed. This dataset focuses on outcome measurement regardless of treatment, moving from procedure- to patient-centered outcomes. Implementation of this dataset will facilitate global standardization of outcome measurement, allow meaningful comparison between health care systems and evaluation of clinical practice guidelines, and eventually improve patient care for those experiencing HVD worldwide.
Study context
- Population
- Patients with aortic/mitral/tricuspid valve disease or root/ascending aorta >40 mm
Methodological detailsmultisociety working group, benchmark analyses and systematic reviews
- Multisociety working group
- Benchmark analyses and systematic reviews
Main finding
As reported in the abstract
Outcome domains defined (vital status, patient-reported outcomes, progression of disease, cardiac function and durability, and complications of treatment)
5
Further findings
Outcome measures selected
- Outcome measures selected
- 16
- Patient-reported outcomes among them
- 2
Case-mix variables
- Demographic factors, demographic variables, echocardiographic variables, heart catheterization variables, and specific details on aortic/mitral/tricuspid valves and their specific interventions
Original publication
Summarised from the published abstract; every number is checked against it