Cohort study
Representation of Race and Ethnicity in the Contemporary US Health Cohort All of Us Research Program
- Cohort study
Authors' conclusion
Recruitment trends for the ongoing AoU show relatively improved representation of some major race groups with geographic trends.
Study context
- Population
- US adults ≥18 years in the All of Us (AoU) Research Program, May 2017 to June 2022, compared with the US Census Bureau Decennial Survey 2020 (DEC)
- Participants
- 358,705 adults
- Exposure
- AoU cohort vs US 2020 Decennial Census
- Non-Hispanic Asiann = 12,710
- Non-Hispanic Black or African Americann = 73,348
- Hispanic or Latinon = 58,488
- Non-Hispanic Whiten = 205,457
- Uncategorized or multiple racesn = 8,702
- Outcome
- Extent of under- or overrepresentation of each racial group in AoU relative to DEC, nationwide and state-level
Main finding
As reported in the abstract
Representation in AoU relative to DEC 2020 (nationwide)
Absolute difference (95% CI)
Non-Hispanic White vs DECunderrepresented
−3.54%(−3.70 to −3.38)
Uncategorized or multiracial vs DEC0.43-fold likely to be represented
−2.19%(−2.24 to −2.14)
Non-Hispanic Asian vs DECunderrepresented, prominently in most states
−2.54%(−2.60 to −2.48)
Hispanic or Latino vs DECnominally underrepresented
−0.46%(−0.58 to −0.34)
- Non-Hispanic Black or African American vs DEC · overrepresented; relative scale 1.94-fold
- absolute difference 8.73%
Observational data: associations, not effects.
Further findings
Sex and age (participants with available sex at birth and age data)
Mean (SD) age Female 53.1 (17.0) years · Male 56.7 (17.0) years · Nonbinary 55.4 (15.8) years
- Sex and age (participants with available sex at birth and age data): 355 413 with available sex at birth and age data
Original publication
Representation of Race and Ethnicity in the Contemporary US Health Cohort All of Us Research Program. JAMA Cardiol. Published 1 September 2023. doi:10.1001/jamacardio.2023.2411
Summarised from the published abstract; every number is checked against it