Heart failure & cardiomyopathiesResearch article
Toward developing a patient reported outcomes measure for children with heart failure: A qualitative study design
- qualitative interviews or focus groups
- 2 children's hospitals
- directed content analysis
Authors' conclusion
The health and social experiences of adolescents with HF differ from adults with HF and warrant development of an adolescent-specific PROM. Such a PROM would be useful to clinicians managing adolescents with HF and to regulators evaluating emerging medical products.
Study context
- Population
- Patients aged 12 to 21 years with recent heart failure (HF) and their caregiverspatients Twenty-one · caregivers 12
Main finding
As reported in the abstract
Primary themes
- functional impairment (eg, inability to participate in activities of daily living)
- social impact (eg, feeling different or isolated from others)
- emotional impact (eg, anxiety, depression, frustration)
- illness burden (eg, taking multiple medications, time burden of clinic visits and procedures)
- Primary themes spanned 4 domains
Original publication
Toward developing a patient reported outcomes measure for children with heart failure: A qualitative study design. Am Heart J. Published 3 June 2026. doi:10.1016/j.ahj.2026.107496
Summarised from the published abstract; every number is checked against it