Congenital heart diseaseCohort study
National Survival Estimates After Surgical Repair of Congenital Heart Disease
- nationally representative survival estimates from a multi-institutional clinical registry matched to the National Death Index
- Kids’ Inpatient Database 2000 age- and sex-specific weights
- Kaplan-Meier curves
Authors' conclusion
The weighted PCCC-National Death Index methodology provides the first nationally representative estimates of long-term survival after benchmark congenital heart disease in the United States. These estimates provide an important resource for healthcare planning and research for the growing population of individuals with congenital heart disease.
Study context
- Population
- Children aged 0 to 20 years at the time of their benchmark congenital heart surgery (CHS) from 1998 to 2002 and surviving to hospital dischargecases, 3802 (48%) were female, and 4505 (57%) were infants at the time of CHS
- Participants
- 7,973 children
- Exposure
- Unweighted Pediatric Cardiac Care Consortium (PCCC) survival estimates were also compared with those of Boston Children’s Hospital
Main finding
As reported in the abstract
Nationally representative survival curves for 7 benchmark CHS · through December 2019
- These weighted national survival curves closely mirrored the unweighted curves derived from PCCC-National Death Index
Observational data: associations, not effects.
Further findings
Unweighted survival estimates, PCCC vs BCH
- Unweighted survival estimates from PCCC also closely approximated those from BCH, with only modest differences observed for selected lesions
Original publication
National Survival Estimates After Surgical Repair of Congenital Heart Disease. Circ Popul Health Outcomes. Published 13 October 2026. doi:10.1161/circoutcomes.125.013189
Summarised from the published abstract; every number is checked against it