Arrhythmias & electrophysiology

PULSE survey: Population Survey on Knowledge, Gaps and Perception of Heart Rhythm disorders—an initiative of the Scientific Initiatives Committee of the European Heart Rhythm Association

EuropacePublished Cross-sectional study

Main finding · 'very' or 'moderately afraid' of CAResult — go to the resultOdds ratio 1.159 CI 1.005–1.337

Authors' conclusion

Significant knowledge gaps regarding CA exist in the general population.

Study context

Population
General population (59% female, 90% European)
Participants
3,924 participants
Exposure
Healthy vs cardiac arrhythmias (CA)
  • Healthyn = 2,177
  • CAn = 1,747
Outcome
Public perception of cardiac arrhythmias and knowledge gaps
Methodological details36-item online survey via social media, Conducted under the auspices of the EHRA Scientific Initiatives Committee with EHRA patient committee support
  • 36-item online survey via social media
  • Conducted under the auspices of the EHRA Scientific Initiatives Committee with EHRA patient committee support

Main finding

'very' or 'moderately afraid' of CA

Odds ratio

1.159

CI 1.005–1.337

P = 0.046

Femalesvs Males
OR 1.159 (CI 1.005–1.337); P = 0.046

As reported in the abstract

Reported fear of CA
81%
Recognised HF as complication
82%
Recognised stroke as complication
80%
Recognised death as complication
75%
Unaware CA can be asymptomatic
43%

Observational data: associations, not effects.

Further findings

Confidence identifying SCD and initiating cardiopulmonary resuscitation (CPR)

OR (CI)P value
Retired0.574 (0.499–0.660)P < 0.001
Southern Europeans0.703 (0.600–0.824)P < 0.001
Confidence identifying SCD and initiating CPR — CPR training in past 5 years: 2.6 times more confident identifying SCD and 4.7 times initiating CPR
P < 0.001
Confidence identifying SCD and initiating CPR — Without CPR training, confident initiating CPR
15%

Symptoms and treatment among CA participants

Severe to disabling daily symptoms
28%
Asymptomatic, males vs females
20% vs. 9%, P < 0.001
Treatment rates, comparable between sexes
81% vs. 79%, P = 0.413
Interdisciplinary shared decision-making reported
4%
CA self-diagnosed with wearable device
1 in 10
Smartwatch use for self-monitoring
30%

Original publication

PULSE survey: Population Survey on Knowledge, Gaps and Perception of Heart Rhythm disorders—an initiative of the Scientific Initiatives Committee of the European Heart Rhythm Association. Europace. Published 31 March 2025. doi:10.1093/europace/euaf032

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