Congenital heart disease

Response of health-related quality of life following pediatric/congenital cardiac catheterization procedures

Am Heart JPublished Prospective cohort study

Authors' conclusion

Across a range of transcatheter interventional procedures, patient-reported cardiac-specific HRQOL improved in short term follow up, though these changes were not seen in parent/guardian reported measures.

Study context

Population
School-age children and adolescents (ages 8–18) undergoing pediatric/congenital cardiac catheterization
Participants
70 patient-parent/guardian dyads
Exposure
Diagnostic vs interventional cardiac catheterization procedures
Outcome
Change in HRQOL from baseline (Pediatric Cardiac Quality of Life Inventory)
Follow-up
1 and 3 months
Methodological detailssingle-centre, longitudinal
  • Single-centre
  • Longitudinal

Main finding

As reported in the abstract

Cardiac-specific HRQOL change from baseline
Diagnostic: no significant change in cardiac-specific health related quality of life (HRQOL)
P > .05
Interventional: patient-reported cardiac-specific HRQOL increase at 1 month
4.3±11, P = .04
Interventional: patient-reported cardiac-specific HRQOL increase at 3 months
5.9±11.4, P = .02
Interventional: no such change in parent/guardian-reported cardiac-specific HRQOL
P > .05

Observational data: associations, not effects.

Further findings

PROMIS physical function, psychological symptoms, social function vs baseline cardiac-specific HRQOL

Associated with baseline cardiac-specific HRQOL
all P < .05
No associations between other patient-reported outcomes and baseline HRQOL or change to 3-month follow-up

Original publication

Response of health-related quality of life following pediatric/congenital cardiac catheterization procedures. Am Heart J. Published 4 December 2024. doi:10.1016/j.ahj.2024.11.017

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