Heart failure & cardiomyopathies
Association of Patient Reported Outcomes With Caregiver Burden in Older Patients With Advanced Heart Failure: Insights From the SUSTAIN-IT Study
Authors' conclusion
Among survivors at 12 months, baseline and change in patient health status were associated with subsequent caregiver time on task and task difficulty in dyads receiving advanced heart failure surgical therapies
Study context
- Population
- Older patients (60–80 years) receiving advanced surgical HF therapies and their caregivers
- Participants
- 162 caregivers
- Exposure
- Patient health status vs caregiver burden
- Outcome
- Change in caregiver burden: OCBS-time and OCBS-difficulty (range 1-5; lower = better), predicted by KCCQ-12 (range 0-100; higher = better)
- Follow-up
- 12 months
Methodological detailsmulticentre, 13 US sites
- Multicentre
- 13 US sites
Main finding
As reported in the abstract
Predictors of 12-month caregiver burden (OCBS-time, OCBS-difficulty; multivariable linear regression)
- A 10-point higher baseline 12-item Kansas City Cardiomyopathy Questionnaire · OCBS-time
- β −0.09 (95% CI −0.14 to −0.03); P < 0.001
- A 10-point higher baseline 12-item Kansas City Cardiomyopathy Questionnaire · OCBS-difficulty
- β −0.08 (95% CI −0.12 to −0.05); P < 0.001
- Each 10-point improvement in the 12-item Kansas City Cardiomyopathy Questionnaire · OCBS-time
- β −0.07 (95% CI −0.12 to −0.03); P = 0.002
- Each 10-point improvement in the 12-item Kansas City Cardiomyopathy Questionnaire · OCBS-difficulty
- β −0.09 (95% CI −0.12 to −0.06); P < 0.001
- Caregivers with improved OCBS-time
- 99 (61.1%)
- Caregivers with improved OCBS-difficulty
- 61 (37.7%)
Observational data: associations, not effects.
Original publication
Association of Patient Reported Outcomes With Caregiver Burden in Older Patients With Advanced Heart Failure: Insights From the SUSTAIN-IT Study. Circ Heart Fail. Published 24 June 2024. doi:10.
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