Transition to adult care of young people with congenital heart disease: impact of a service on knowledge and self-care skills and correlates of a successful transition
Authors' conclusion
A transition service positively impacts on patient education and empowerment in most CHD adolescents transitioning to adult care.
Study context
- Population
- Adolescents with congenital heart disease (CHD) seen in a transition service, 2015–2022 (age 15.2 ± 1.8 years, 47.5% female)
- Participants
- 592 adolescents
- Exposure
- Without learning disability (LD) vs LD
- Outcome
- Knowledge of cardiac condition (naming, describing, understanding) and successful transition (attendance of ≥ 2 clinics)
- Follow-up
- First to second and third visit
Methodological detailssingle-centre transition clinic
- Single-centre transition clinic
Main finding
As reported in the abstract
Knowledge of cardiac condition, patients without LD · first to second visit
- Naming their condition: from 20 to 52.3%
- P < 0.0001
- Describing: 14.4-42.7%
- P < 0.0001
- Understanding: 26.1-60.7%
- P < 0.0001
- Second to third visit, naming: 67.4%
- P = 0.004
- Second to third visit, describing: 61.4%
- P < 0.001
- Second to third visit, understanding: 71.1%
- P = 0.02
- Patients with LD did not improve disease knowledge over time
- all P > 0.05
- Successful transition (attendance of ≥ 2 clinics)
- 49.3%
Observational data: associations, not effects.
Further findings
Treatment adherence, management involvement, self-reported anxiety, dental care awareness
- Did not change over time
Correlates of successful transition
- Younger age at first visit, simpler CHD and absence of physical disability (PD) associated with successful transition
Original publication
Transition to adult care of young people with congenital heart disease: impact of a service on knowledge and self-care skills and correlates of a successful transition. Eur Heart J Qual Care Clin Outcomes. Published 15 February 2023. doi:10.
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